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Where Can I Get Help With My Pws

In summary, there are many organizations and resources available for individuals with Prader-Willi Syndrome (PWS) and their families. These include the Prader-Willi Syndrome Association (PWSA) USA, PWSA Canada, PWSA UK, and the Foundation for Prader-Willi Research (FPWR). These organizations offer support groups, educational resources, and information on PWS research and treatments. To find a doctor or specialist knowledgeable about PWS, you can consult the directories provided by PWSA USA and PWSA Canada, or ask for recommendations from your local PWS support group. There are also financial assistance programs available, such as Social Security Disability Insurance and Medicaid, as well as non-profit organizations
T
Tonimabbott
34
I find it very confusing! Do I set up my cooking show in P3 and then again on my PWS?
 
Set up your show in P3 and then in the show summary section, check mark the little box that says to create the show on your PWS. Then you have to synch P3. Then it will show up on your PWS assistant. Hope that helps! :)
 
  • Thread starter
  • #3
Thanks so much! I will try it now.
 

Related to Where Can I Get Help With My Pws

1. Where can I find support for individuals with Prader-Willi Syndrome (PWS)?

There are many organizations and resources available for individuals with PWS and their families. Some options include the Prader-Willi Syndrome Association (PWSA) USA, Prader-Willi Syndrome Association (PWSA) Canada, Prader-Willi Syndrome Association UK, and the Foundation for Prader-Willi Research (FPWR). These organizations offer support groups, educational resources, and information on PWS research and treatments.

2. How can I find a doctor or specialist who is knowledgeable about PWS?

The PWSA USA and PWSA Canada have directories of doctors and specialists who are experienced in treating individuals with PWS. You can also ask for recommendations from your local PWS support group or reach out to the PWSA organizations for assistance in finding a specialist in your area.

3. Are there any financial assistance programs available for individuals with PWS?

Yes, there are several financial assistance programs available for individuals with PWS and their families. These include government programs such as Social Security Disability Insurance and Medicaid, as well as non-profit organizations that offer financial assistance for medical expenses and therapies specific to PWS.

4. Where can I find educational resources for PWS?

The PWSA USA and PWSA Canada offer educational resources for individuals with PWS, their families, and educators. These resources include webinars, fact sheets, and information on educational strategies for individuals with PWS. Additionally, the FPWR offers a comprehensive PWS handbook with information on medical and educational aspects of PWS.

5. How can I connect with other families who have a loved one with PWS?

The PWSA organizations offer support groups and conferences for families and individuals with PWS to connect with others in the community. You can also join online support groups and forums such as the PWSA USA Facebook group or the FPWR community forum to connect with other families and individuals with PWS.

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